goldwater

Written by Laurie McGinley for the Washington Post “Where’s Jordan?” asked Vice President Pence as he walked into the White House meeting of terminally ill patients and their families. All eyes shifted, and Pence made a beeline for a 7-year-old boy from Indianapolis with a broad grin. Back home, when Pence was Indiana’s governor, Jordan McLinn and […]

Written by Bob Tedeschi for Stat News. Harrisburg, Pa. — To hear Bob Godshall tell it, he has no business being alive. Eleven years ago, at age 72, he was diagnosed with multiple myeloma, a type of bone cancer. His doctors told him to get his affairs in order. He’d be gone within a year. But when Godshall […]

Frankfort, KY—Today a law protecting the right of terminally ill patients to access to medicines that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves was passed by the Kentucky State House 87-7. The law previously passed in the State Senate with unanimous, bipartisan support. The Kentucky Right To […]

Columbus—A law to give terminally ill patients access to medicines that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves has been signed by Governor John Kasich. This makes Ohio the 33rd state in less than three years that has adopted a “Right To Try” law. Right To […]

Originally published by Aiden Cimbura and Ellie Cimbura for The Denver Post Twenty months ago our dad was diagnosed with ALS. Once very athletic, he can no longer dress himself, brush his teeth, breathe without the use of a machine, speak without the help of a communication device, shower on his own, eat a meal, […]

Originally published by I. Richard Garr for The Hill A recent column in The Hill made several points in opposition to S. 2912 and the broader Right to Try concept that are either the result of misinformation or an incomplete understanding of how the laws will actually work. I am writing to correct these (presumably unintentional) misrepresentations. S. […]

Sacramento—A law giving terminally ill patients access to medicines that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves has been signed by Governor Jerry Brown. This makes California the 32nd state to adopt a “Right To Try” law. Right To Try allows doctors to treat terminally ill […]

Originally published by Ron Johnson for The Wall Street Journal The Terminally Ill Deserve Right-to-Try Laws | The Wall Street Journal In 2014 I met a young mother of three from Waukesha, Wis. Her name was Trickett Wendler, and she had the degenerative nerve disease amyotrophic lateral sclerosis (ALS). Before her diagnosis, Trickett was living a […]

Originally Published by Ed Silverman for Stat News.  FDA approves Sarepta’s controversial drug for Duchenne muscular dystrophy | Stat News The Food and Drug Administration on Monday approved a controversial drug to treat Duchenne muscular dystrophy, a rare disease that confines boys to wheelchairs and condemns them to an early death. The decision came after months of […]