When you’re out of options, you’ll need Right to Try

Originally published by I. Richard Garr for The Hill A recent column in The Hill made several points in opposition to S. 2912 and the broader Right to Try concept that are either the result of misinformation or an incomplete understanding of how the laws will actually work. I am writing to correct these (presumably unintentional) misrepresentations. S. […]

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Texas Doctor Using Right To Try Law to Treat Cancer Patients

Meet the Texas doctor using Right To Try to treat cancer patients. Washington, D.C.— A promising lifesaving treatment is now available to patients suffering from terminal neuroendocrine carcinoid cancers—a deadly type of cancer that gained attention in 2011 when Apple founder and CEO Steve Jobs died from it. In testimony before the U.S. Senate, Houston-based oncologist […]

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The Terminally Ill Deserve Right-to-Try Laws

Originally published by Ron Johnson for The Wall Street Journal The Terminally Ill Deserve Right-to-Try Laws | The Wall Street Journal In 2014 I met a young mother of three from Waukesha, Wis. Her name was Trickett Wendler, and she had the degenerative nerve disease amyotrophic lateral sclerosis (ALS). Before her diagnosis, Trickett was living a […]

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FDA approves Sarepta’s controversial drug for Duchenne muscular dystrophy

Originally Published by Ed Silverman for Stat News.  FDA approves Sarepta’s controversial drug for Duchenne muscular dystrophy | Stat News The Food and Drug Administration on Monday approved a controversial drug to treat Duchenne muscular dystrophy, a rare disease that confines boys to wheelchairs and condemns them to an early death. The decision came after months of […]

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GOP Platform Supports Terminally-Ill Patients’ Right to Experimental Drugs

Originally written by Mary Lou Lang-Byrd for freebeacon.com The Republican Party platform committee adopted language on Monday supporting terminally ill patients’ access to drugs that have not been fully approved by the Food and Drug Administration. “We commend those states that have passed Right to Try legislation, allowing terminally ill patients the right to try […]

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