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Jim Burhorn was a healthy 59-year-old man living in Colorado when he was diagnosed with neuroendocrine cancer. After removing part of his pancreas, Jim’s doctors recommended a promising treatment. But Jim would have to travel to Switzerland for the treatment because the FDA hasn’t yet approved it in the United States. Jim was afraid if […]
Read More ›On his birthday and six months after spotting a lump on his left collarbone, Mark Angelo was diagnosed with pancreatic neuroendocrine cancer. Mark would spend the next three years undergoing oral chemotherapy treatment while his health and quality of life quickly declined. The chemo proved to be ineffective after exhausting all treatment options, Mark’s doctor […]
Read More ›In the summer of 2013, Dr. David Curtis Glebe was diagnosed with Stage IV pancreatic neuroendocrine cancer, the same rare cancer that took the life of former Apple CEO Steve Jobs. After undergoing an aggressive regimen of oral chemotherapy for over two years, resulting in a remarkable 90% decrease in his tumor burden, Dr. Glebe’s […]
Read More ›At only four weeks old Jackson’s parents noticed that he was showing signs of daily pain. At three months old, Jackson was diagnosed with the most severe form of spinal muscular atrophy. The Silvas were told there was nothing that could be done. Refusing to believe that, Jackson’s parents did research on their own and […]
Read More ›Matt is a U.S. Navy veteran, husband, father to two. His life as a naval aviator and active father was changed forever when he was diagnosed with ALS at 30 years old. With no cure, ALS is a certain death sentence and Matt is acutely aware of the time he does not have. While there […]
Read More ›Washington, D.C.—Today the U.S. Senate approved Right to Try, a law that gives new hope to patients facing life-threatening illnesses. Under the legislation, those suffering from terminal illnesses can gain access to medication still being tested in clinical trials, while offering protection to doctors and pharmaceutical companies who come to patients’ aid. The Senate passed […]
Read More ›August 2, 2017 Dear Senators: As advocates for Americans facing terminal and life-threatening illnesses, we write to urge your support for the amended version of S. 204, the Trickett Wendler, Frank Mongiello, Jordan McLinn Right to Try Act of 2017. This bill will help protect the right of sick Americans to try to save […]
Read More ›Annapolis, MD—A law protecting the right of terminally ill patients to pursue treatments that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves has been passed unanimously by the Maryland State House and Senate and signed into law by Governor Larry Hogan (R). The Maryland Right To Try Act, […]
Read More ›Des Moines—A law protecting the right of terminally ill patients to pursue treatments that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves has been passed unanimously by the Iowa State House and Senate and signed into law by Governor Terry Branstad. The Iowa Right To Try Act, SF […]
Read More ›Olympia, WA—A law protecting the right of terminally ill patients to pursue treatments that have passed Phase 1 of the FDA approval process but are not yet on pharmacy shelves has been passed unanimously by the Washington State House and Senate and signed into law by Governor Jay Inslee (D). The Washington Right To Try Act, […]
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