Right to Try Fact vs. Fiction

Download the PDF here    Fictitious Claim Fact  Right to Try would cut the FDA out of the process Right to Try not only recognizes the FDA’s important and valued role in providing for patient safety, but it also works in tandem with the FDA human safety requirements, payment rules, and reporting requirements. Right to […]

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Jim Burhorn

Jim Burhorn was a healthy 59-year-old man living in Colorado when he was diagnosed with neuroendocrine cancer. After removing part of his pancreas, Jim’s doctors recommended a promising treatment. But Jim would have to travel to Switzerland for the treatment because the FDA hasn’t yet approved it in the United States. Jim was afraid if […]

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Mark Angelo

On his birthday and six months after spotting a lump on his left collarbone, Mark Angelo was diagnosed with pancreatic neuroendocrine cancer. Mark would spend the next three years undergoing oral chemotherapy treatment while his health and quality of life quickly declined. The chemo proved to be ineffective after exhausting all treatment options, Mark’s doctor […]

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David Curtis Glebe

In the summer of 2013, Dr. David Curtis Glebe was diagnosed with Stage IV pancreatic neuroendocrine cancer, the same rare cancer that took the life of former Apple CEO Steve Jobs. After undergoing an aggressive regimen of oral chemotherapy for over two years, resulting in a remarkable 90% decrease in his tumor burden, Dr. Glebe’s […]

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Jackson Silva

At only four weeks old Jackson’s parents noticed that he was showing signs of daily pain. At three months old, Jackson was diagnosed with the most severe form of spinal muscular atrophy. The Silvas were told there was nothing that could be done. Refusing to believe that, Jackson’s parents did research on their own and […]

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Matt Bellina

Matt is a U.S. Navy veteran, husband, father to two. His life as a naval aviator and active father was changed forever when he was diagnosed with ALS at 30 years old. With no cure, ALS is a certain death sentence and Matt is acutely aware of the time he does not have. While there […]

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U.S. Senate Approves Right to Try Law

Washington, D.C.—Today the U.S. Senate approved Right to Try, a law that gives new hope to patients facing life-threatening illnesses. Under the legislation, those suffering from terminal illnesses can gain access to medication still being tested in clinical trials, while offering protection to doctors and pharmaceutical companies who come to patients’ aid. The Senate passed […]

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Right to Try Letter of Support

August 2, 2017 Dear Senators: As advocates for Americans facing terminal and life-threatening illnesses, we write to urge your support for the amended version of S. 204, the Trickett Wendler, Frank Mongiello, Jordan McLinn Right to Try Act of 2017. This bill will help protect the right of sick Americans to try to save their […]

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