Governor Ricketts signs law to help terminally ill Contact: Starlee Coleman, scoleman@goldwaterinstitute.org Lincoln, NE—Governor Pete Ricketts has signed the Nebraska Right to Try Act, a Goldwater Institute measure that protects the right of terminally ill patients to try promising new treatments that are being safely used in clinical trials but are not yet widely available. […]
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Finally in the air after the flight out of Phoenix was delayed by 30 minutes. And then we sat for another hour before pulling from the gate. “Rain?” Really, this was the cause for the delay? It’s Monday afternoon and I’m on the road again. This time to Nashville and from there, Indianapolis. I’m not […]
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Joshua and Joy Thompson’s lives were filled with hope and opportunity. With a baby on the way, and many new memories ahead, they, like most young parents, could have not have been more excited to begin the next chapter of their life. Josh was an avid, talented surfer who loved to experience the soothing sound […]
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Originally posted in PBS by Stephen Fee Drugmaker Johnson & Johnson said today that it would tap bioethicist Arthur Caplan of the NYU School of Medicine to lead an independent group overseeing requests from dying patients to use experimental medications. The company says the panel will be the first of its kind, advising J&J subsidiary […]
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Originally posted in the Wall Street Journal by Jonathan D. Rockoff Under increasing pressure to expand access to experimental medicines, Johnson & Johnson has arranged for an independent panel to review requests from seriously ill patients who want to try an unapproved drug even if they aren’t participating in the drug’s testing. The committee of […]
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Originally posted in the New York Times by Katie Thomas Johnson & Johnson has appointed a nationally known bioethicist to create a panel that will make decisions about patients’ requests for potentially lifesaving medicine, responding to an emotional debate over whether companies should allow desperately ill people to have access to the drugs before they […]
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Originally posted in Fox News by Bartley J. Madden and James P. Pinkerton Expediting the development and delivery of medical treatments—treatments that bring a new standard of care, or even actual cures for serious illnesses—should be a bipartisan goal, a mission of mercy that should be undertaken by both political parties. We are both involved […]
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Originally posted in the Washington Post by Ana Swanson Joshua Hardy, an 8-year-old from Fredericksburg, Va., came very close to dying last March. He was battling a life-threatening infection that he developed after receiving a bone marrow stem cell transplant when his doctors recommended he try a medicine called Brincidofovir, then in the final phase […]
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Outside my window, in the early morning light, I could see the bright red Coca Cola sign shine larger than any other in the city. “Yeah, Atlanta, the birth place of Coke.” I’ve awakened more times than I can count in the last two months wondering—what city am I in? Which coast am […]
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Originally published in the Washington Post by Amy Ellis Nutt and Brady Dennis For people with amyotrophic lateral sclerosis, which attacks the body’s motor neurons and renders a person unable to move, swallow or breathe, the search for an effective treatment has been a crushing disappointment. The only drug available for the disease, approved two […]
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