Matt Bellina

Matt is a U.S. Navy veteran, husband, father to two. His life as a naval aviator and active father was changed forever when he was diagnosed with ALS at 30 years old. With no cure, ALS is a certain death sentence and Matt is acutely aware of the time he does not have. While there is no way to stop ALS, there are investigational drugs that show promise. However, Matt is unable to try them due to FDA regulations. Matt’s wife, Caitlin, sums this situation up best: “Knowing that Matt can’t try experimental drugs when he has a terminal illness that’s going to kill him anyway is the dumbest thing ever.” Knowing the urgency of his and others’ diagnoses, he is now fighting for the right of all terminally ill to try safe-promising treatments.