Jim Burhorn was a healthy 59-year-old man living in Colorado when he was diagnosed with neuroendocrine cancer. After removing part of his pancreas, Jim’s doctors recommended a promising treatment. But Jim would have to travel to Switzerland for the treatment because the FDA hasn’t yet approved it in the United States. Jim was afraid if […]
Read More ›On his birthday and six months after spotting a lump on his left collarbone, Mark Angelo was diagnosed with pancreatic neuroendocrine cancer. Mark would spend the next three years undergoing oral chemotherapy treatment while his health and quality of life quickly declined. The chemo proved to be ineffective after exhausting all treatment options, Mark’s doctor […]
Read More ›In the summer of 2013, Dr. David Curtis Glebe was diagnosed with Stage IV pancreatic neuroendocrine cancer, the same rare cancer that took the life of former Apple CEO Steve Jobs. After undergoing an aggressive regimen of oral chemotherapy for over two years, resulting in a remarkable 90% decrease in his tumor burden, Dr. Glebe’s […]
Read More ›At only four weeks old Jackson’s parents noticed that he was showing signs of daily pain. At three months old, Jackson was diagnosed with the most severe form of spinal muscular atrophy. The Silvas were told there was nothing that could be done. Refusing to believe that, Jackson’s parents did research on their own and […]
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Bertrand is a very special little boy. He was the first person ever to be diagnosed with a rare, fatal genetic disorder called NGLY1 that has left this seven-year-old paralyzed. Because the disease was only identified by scientists in 2012, and only a few people worldwide have been diagnosed with it, there is no […]
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Tracy Canter lost her mother to breast cancer two years ago. Once diagnosed with the deadly disease, her mother was required to drive 8 hours to Redlands, California every couple of weeks to receive the best available medicine as opposed to getting it in her home of Tucson. With little money left to travel and […]
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Kathleen Thompson’s son Josh was diagnosed with ALS in 2007. After many promises from the FDA and much time spent working to get the necessary treatments, Josh was denied access to possibly life-saving medicine, crippling this young man’s ability to live. NY Times: Fighting for a Last Chance at Life Please share his story! [ssba]
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Locky’s dad wasn’t one of the lucky ones. Nick Auden was just 41 when he died last year of melanoma. When he was diagnosed with the disease in 2011, the avid athlete and father of three was hopeful that a promising clinical trial for what he called a “wonder drug” might extend his life, but […]
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“A little soreness is just a symptom of a dual sport athlete.” That was the thought that Diego Morris and his family had when the ten-year-old woke up with pain in his left leg and back in 2012. When the doctors diagnosed him, Diego’s family realized it was much worse. Osteosarcoma, a rare form of […]
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“I like rehab,” Jordan told the Indiana House representatives. “I like being a fireman. And I like rescuing people.” But, Jordan’s parents had a very serious message to share: the right to try an experimental drug to save their son. “This is my son and he’s a real person that’s running around here like he […]
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